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PARC: News

Oct. 1, 2004.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

PARC PEARL:FALL ISSUE 2004

Topics:

    • "MAIN PAIN MAN": a visit with Dr Gary Bennett, Dept. of Anesthesia, McGill University, Montreal, PQ about his upcoming RSD/CRPS research

    How You Can Help

    RSD/CRPS Conference Sept. 10-12, 2004 San Diego, CA. lectures, what's new in treatments, drugs etc.

    DEALING WITH PAIN (series) part 3: Tracking System

    much more!


PAIN IGNORED

HEARING TOLD

Jason Tchir Toronto Sun August 6, 2004.

 

A Scarborough Grace hospital doctor denies allegations that a 73 year old woman was in agonizing pain and that he told her family that it was all in her head, a medical review board was told by his lawyer yesterday.
"He told us she was mental", Sandi Rait testified at a Health Professions Appeal and review Board Panel into allegations against Scarborough Grace internist Dr Ponnuthurai Sivaji,
“We were talked to like we were 2 year old children," she said.

Rait was appealing a College of Physicians and Surgeons finding that Sivaji had take an appropriate care of Rait's mother, Helen Nicoll, when she was admitted to hospital in October 2002 after she fell twice.
Sivaji is out of the country and could not appear before the panel his lawyer, Brain Wasyliw, said.
Rait and her sister, Kathy Hasted, said Sivaji granted them only two brief meetings and refused to acknowledge their complaints that their mother was screaming in pain.

Wasyliw said the doctor has denied ever saying that the pain was imaginary.
The charts show he ordered tests quickly and her ordered referrals to five other specialists". Wasyliw said.
He took it seriously."
The panel said it would deliver a written decision within 90 days.

 

Editor's comments: This situation, unfortunate though it may be, goes on every day in the hospitals in Canada. Doctors do not listen to patients in pain and we admire these ladies for calling the doctor out on his deplorable behaviour.


PARC PEARL SUMMER 2004 ISSUE!

 

    INTERVIEW with Dr Harry Pollett, Anesthesia and Pain Management, Northside General Hospital, North Sydney, Nova Scotia, Canada.

    Dealing with Pain: (series) POWER TOOLS

    "Spinal Cord Stimulation in patients with CRPS-1: Long term results" by M van Kleef MD, Dept. of Anesth. and Pain Management, AZ Maastricht

    "Is There a Genetic Explanation for CRPS" by Prof. Zuurmond et al UMC St. Radboud, Nijmegen,Holland

    Amazing Ayala: Chatelaine June Issue

More and more people are subscribing to our newsletter which features the latest in RSD/CRPS news, drugs, treatments and research.

How do I subscribe? Preview the June issue! CLICK HERE.


ANNOUNCING:

THE RSD CANADA SURVEY

As of January 9, 2004, RSD CANADA has officially launched its online CRPS/RSD survey! Please support the first RSD survey in Canada!

Please complete this survey if:

    you have been diagnosed with RSD/CRPS

    you suspect that you may have RSD/CRPS

    you are diagnosed with fibromyalgia of the upper extremities

Please take part. Click here for survey!

If you do not have computer access, have a friend send your complete mailing address to RSD CANADA for a paper copy. RSD CANADA SURVEY. Another way to request a paper copy is to write:

RSDCANADA SURVEY
c/o PO Box 21026
St. Catharines, Ontario
Canada L2M 7X2

 


PAIN AND THE PATIENT

As part of National Pain Awareness Week, UFT, Wasser Pain Clinic, Mt Sinai Hospital, CPC, CPS are presenting a pain symposium:

7: 30 Breakfast

8:00 Opening Remarks

8:15 "Why it is important to treat my pain": Patient Advisory Group

8:45 Discussion and questions

9:00 "Using opiates for chronic pain": Dr Roman Jovey

9:30 "Managing pain and addiction" Doug Gourlay MD

10:00 Discussion and questions

10:30 Coffee break

11:00 "Does cannibis work for chronic pain?": Dr Mark Ware

11:00 "What is neuropathic pain?": Dr Allan Gordon

11:15 "Cognitive behavioural therapy for chronic pain": Ted Robinson

11:30 Panel Discussion and questions

12:15 Closing Remarks

12:30 Lunch

PLACE: 89 Chestnut Street Residence, locatd at 89 Chestnut Street, (Former Colony Hotel Downtown, Toronto, Colony Ballroom, 2nd floor).

Registration is required for anyone wishing to attend this event for a nominal fee of $25.00. Payable by VISA or Master Card.

Please send name, address, and fee to:

The University of Toronto Center for the Study of Pain

c/o Faculty of Dentistry

124 Edward Street, Room 374,

Toronto Ontario

M5G 1G6

Registration deadline: October 15, 2004,

For further details email us at PARC:


PARC and NACPAC present:

QI GONG for CHRONIC PAIN

with Sensei George Picard

Glenridge Martial Arts Academy

St. Catharines, Ontario

DATE: November 2004

PLACE: 125 Welland Avenue,

St. Catharines, Ontario

For further details contact us at PARC. Watch this space for date to be confirmed soon!


 

ART WORK FOR FUNDRAISING

A local Niagara artist had generously donated artwork to PARC so that we can raise funds for all our projects in 2004. Each piece is handcrafted in exquisite detail. In this technological age, it is refreshing to see such beautiful art work still being produced by hand in order to keep the calligraphic arts alive.

CREATIVE CALLIGRAPHY

Each 5x7 is an inspirational quote suitable for grandparents, cherished friends, or loved ones. These gifts are great for any occasion--birthday, anniversary, Valentine's Day or just because you appreciate them! Your choice of quotes unframed or framed are:

 

I've learned that being a grandparent

is God's compensation

for growing older.

---

Never underestimate

the power and potential

of the human spirit.

---

I've learned that

the only thing you owe life

is to become

the best you can be.

---

Available in jet black with gold accents, more fine quality art work with another delightfully positive quote about "beliefs we all hold". This gift is suitable for any occasion and comes framed (8x10) for giving:

I believe that imagination is more important than knowledge.

That myth is more potent than history.

I believe that dreams are more powerful than facts.

That hope always triumphs over experience

That laughter is the only cure for grief

And I believe that love is stronger than death.

 

Due to the handcrafted nature of these gifts, limited quantities are available so order yours now.

Shipping is free to Canadian destinations. US and International orders extra shipping and handling.

CUSTOM ORDERS

If you have a favourite quote or saying that you would like hand lettered in the color of your choice on 5x7 or 8x10 for a specific occasion, please let us know. (For 5x7 allow a maximum of 15 words and about 40-50 words for 8x10.) Our Niagara artist is happy to create a one-of-a-kind original art work to your specifications for your recipient's enjoyment. Custom work takes a great deal of time, effort and energy. Please allow at least 4-6 weeks for completion of work and delivery.

Email us at PARC for more details.

 


PREVIEW OUR MARCH 2004 ISSUE

  • Amazing Ayala: part 2
  • Interview with Dr Harry Pollett
  • The War on Pain
  • DMSO AND NAC Treatments click here.

PARC PEARL Vol 2 Issue 8

is ready for you to read! Topics include:

  • P2X4 Receptor click here.
  • Opiods: The Controversy
  • Tetrodotoxin (Tectin) painkiller news
  • PARC news, RSD CANADA news
  • Botox for CRPS click here!
  • Fundraising with Art

ANNOUNCING:

THE RSD CANADA SURVEY

As of January 9, 2004, RSD CANADA has officially launched its online CRPS/RSD survey! Please support them in the first RSD survey in Canada!

Please take part. Click here for survey!

If you do not have computer access, have a friend send your address to RSD CANADA for a paper copy. RSD CANADA SURVEY.

 


CRPS/RSD RESEARCH: 2004

McGill University, Montreal, Quebec.

Dr. Gary J. Bennett, well known American RSD researcher for many years, has come to McGill to conduct research on CRPS/RSD. PARC is wholeheartedly supporting this research and our team is cheering him on! If you live in the Ontario or Quebec area, this is your chance to help everyone with CRPS/RSD by being a research subject.

We invite you to read about it here!

 

January 2,2004.

PARC PEARL FEATURE ARTICLE: Sept. 2003 Issue

BOTOX FOR CRPS

Recently, botox (botulinum toxin) has become quite popular for cosmetic purposes but did you know it can be useful in the treatment of painful diseases? While we do not yet know how it works, botox injections have been studied for pain relief in various diseases such as postherpetic neuralgia, diabetic neuropathy, CRPS and pain from spinal cord injuries. A recent 2002 study by Dr CE Argoff, describes a trial of 11 CRPS-1 patients who received botox injections into various muscles based on the patient’s reports of pain and the trigger points found on clinical exam. Results in CRPS patients included:

“substantial relief of their burning pain and dysesthetic pain in the affected extremities, as well as normalization of skin color and reduction of any edema that existed before treatment. In addition, the thermal and mechanical allodynia present in all patients before treatment lessened appreciably.”

Moreover, these patients continued to be followed and to receive treatments. Results of treatment have been consistent for 4 years.

A further study is now underway to determine the effect of botox injections into myofascial trigger points in patients with CRPS-1 in one limb. Patients will either receive real treatment (botox) or sham (saline) and physical therapy three times a week. Outcomes will be measured and reported.

Editor’s Comments: This study does not mention if they are using early CRPS subjects or chronic cases. This is an extremely important point because early CRPS responds best to treatments and chronic CRPS is difficult to treat and manage. We hear that a study will soon be underway in Toronto, using botox for CRPS. As for now, the evidence is preliminary but promising. For more info, contact us.

copyright PARC PEARL Vol 2 Issue 8 2003.


International Dutch RSD Conference:

"PD (Post Traumatic Dystrophy) Beyond Borders."

November 14-15, 2003.

Utrecht, Holland.

 

Read the latest developments from this excellent conference in our upcoming March 2004 issue of the PARC PEARL. Topics presented were:

  • "Inflammation and RSD" by RJA Goris MD, Dept. of Surgery, Nijmegen
  • "Neurogenic Inflammation in RSD" by F Birklein, Dept. of Neurology, Mainz, Germany
  • "RSD in Childhood" by AA Lebel, Children's Hospital, Boston, MA
  • "Free Radical Scavenger Treatments in CRPS-1" by R. Perez PhD, VUMC, Amsterdam
  • "Dystonia in CRPS-1" by JJ van Hilten MD, Leiden University Medical Center, Dept. of Neurology, Leiden.
  • "Spinal Cord Stimulation in patients with CRPS-1: Long term results" by M van Kleef MD,Dept. of Anesth. and Pain Management, AZ Maastricht
  • "Psychological Aspects of CRPS" by EC Covington MD, Cleveland Clinic Foundation,, Pain Rehabilitation Program, Cleveland USA
  • "RSD and the Sympathetic Nervous System" by R Baron MD, Neurology Clinic, University of Kiel, Germany.

Why is research important? Significant developments in research point the way for more successful treatments for CRPS. For example, through Dutch research, it was discovered that inflammation in early CRPS is now widely accepted as the cause. As a result, Dutch doctors have a treatment protocol which is used with early CRPS cases (up to one year). This treatment is not yet available in USA or Canada. Why not? There are many closed minds in the medical field in both countries. It is totally outrageous that a successful treatment for early CRPS is not used when patients could benefit!

To preview the next issue of the PARC PEARL Vol. 3 Issue 9, click here.

 

 

 
 
 
 
 
 
 

 


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